I have a rare muscle condition, to the point where I feel like I have to be careful where I even mention it because it might make me identifiable. It’s pretty lonely sometimes because of the subset of people who have this condition, most of them don’t make it to adulthood and I really don’t have anybody to discuss shared experiences with.
Anybody else here in a similar boat?
Not a disability, but I had/have a 1 in 200k autoimmune cancer typically found in children discovered when I was turning 30.