• xnx@piefed.social
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    7 days ago

    I’m sorry to hear that. Have you been keeping up with any of the experimental things people have been reportingly having progress with? I know its very different per person but I thought I’d share this video I saw from someone who recovered https://www.vxtiktok.com/t/ZP8YekavQ/ (sorry its only on tiktok but this vx link should let you watch it without signing in)

    • melp@beehaw.orgOP
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      7 days ago

      Love the vx info and love the treatment talk. I am on low dose naltrexone which has been helpful but not a cure. I liken long haul to having lyme disease. I have a lot of the same issues. I really just need to find a long haul doctor that has patient openings. They’re all booked here with full rosters. It’s been a ride. Thanks for the suggestions.